Wednesday, June 22, 2016

FASD in the News: Higher Autism Prevalence Prenatally Exposed to Alcohol- Pilot Study

FASD in the News.




FASD in the NEWS:


Higher autism prevalence in children prenatally exposed to alcohol: pilot study

""Whether alcohol is actually causing autism symptoms, we don't know," she said. "We can only say that there's a correlation, but we don't know exactly why."
Stade noted that there may be some overlap between FASD symptoms and the symptoms associated with autism. However, she said, children diagnosed with autism in the study presented with symptoms of both disorders.
She recommends that children who are being screened for FASD should also be screened for autism to ensure they're getting every available intervention."

Anny


Saturday, April 16, 2016

Post: Think Before You Drink. Yurcek Family Public Service Announcement






















Today was just sad.  I was thinking about just how much prenatal alcohol exposure has affected some my children. What would their lives had been like if just maybe, they hadn't had their first drink before they were born?

This year the Surgeon General and the Centers for Disease control wrote that women of child bearing years should abstain from alcohol use if they are not on birth control. The announcement created controversy and women were telling the government that they cannot tell us what to do.

The announcement may have been not worded correctly, but it was much needed. Think before you drink. By the time a Mom finds out she is pregnant it may be too late to prevent Fetal Alcohol Spectrum Disorders. Binge drinking and unplanned pregnancies statistics are out there. That unplanned child may grow up with ramifications for life from alcohol. Is it worth it?

In our society the fetus as no rights. My daughter once asked me, "Who cares about my right to be born with a healthy brain and alcohol took that away from me." I couldn't answer that question, but I can raise awareness and advocate and maybe just maybe a Mom will think before she drinks.

Thursday, February 18, 2016

IEP Goals and Objectives Bank



IEP Goals and Objectives Bank

This is a must bookmark site when planning for an IEP and will help make you think of things to add to your list when facing the professionals.

Now it is posted so I can not lose it again.  Thank you to Sandie Porter for reminding me that I had found this.

Anny


Friday, January 22, 2016

FASD: Educational Assessment and Planning for FASD Videos



On the Parenting FASD site, someone posted a great BOOKMARK Worthy webpage.

Videos for Educational Planning for students with FASD's.

FASD: Assessment and Planning for Videos


Anny

Wednesday, January 6, 2016

Article: Over 400 Conditions Co-Occur with Fetal Alcohol Spectrum Disorders (FASD) Study Finds





Article:  Over 400 Conditions Co-Occur with Fetal Alcohol Spectrum Disorders (FASD) Study Finds

I found this amazing article and actually downloaded the article at the Lancet.  It was bookmark worthy and worth the $31.50 I paid for the hard copy.

"Researchers at the Centre for Addiction and Mental Health (CAMH) have identified 428 distinct
disease conditions that co-occur in people with Fetal Alcohol Spectrum Disorders (FASD), in the most comprehensive review of its kind."

Here is the link  for the 1/5/16 article in The Lancet
"Comorbidity of fetal alcohol disorder: a systematic review and meta-analysis."

Anny

Article: Fine Motor Skills and Prenatal Alcohol Exposure


Article: Fine Motor Skills and Prenatal Alcohol Exposures

More and more is written about the effects of FASD.   A couple of my kids on the FASD spectrum have struggles with fine motor skills and visual motor integration.

Anny

Saturday, January 2, 2016

Article: 10 Ways Kids with FASD Are Just Different- And, No, I Can't Just Relax (A Must READ and Bookmark)


Article:  10 Ways Kids with FASD Are Just Different- And, No, I can't Just Relax 
               authored by fasdfamilies.com  1-1-2016

Happy New Year and one of my resolutions are to get back to blogging, writing and sharing resources to help families with FASD and to get them much needed help and understanding.

This post came across my Facebook this morning and I have shared it on my personal wall.  I know this all too well and the author did a phenomenal job of sharing what l8 years have taught me.

This is must READ, must SHARE, and must BOOKMARK article that will really help the cause.

Thank you fasdfamilies.com for the amazing post.

Anny

Monday, December 14, 2015

Thursday, October 8, 2015

Sharing my own thoughts. As I learned my sib set had FASD, I often thought of the kids biological Mom. She had developmental challenges of her own, she came from a family where dad was an alcoholic, she was young, rebellious and schools had failed her. With six children, living in poverty, addiction, little ability to care for herself, little self esteem she became fixated on an abusive relationship.  Could she help herself, probably not. She fits the profile of someone with FASD and she couldn't provide for her children, couldn't parent them and couldn't understand that she wasn't.  Her limited insight on her psychological profile shows that.  I have had periods of anger, but not at biological Mom, but at the system who time after time closed the file and ignored numerous red flags to help them. Kids shouldn't eat grass, shouldn't be diapered in maxi pads and plastic bags, 8 year olds shouldn't have to parent babies and feed them sugar water from the condiments section at Burger King.  Kids shouldn't have to experience the horror stories of what my children faced.  But also their Mom deserved to not be expected to handle all this on her own, she couldn't even handle her own day to day needs, much less her reproductive health.

My little guy's biological Mom walked away from social services after they took her son away. She had lost two other children in two other states, she has developmental delay, an undiagnosed genetic disorder, child of an alcoholic, bio dad wanted to help little guy, but he had been raised in the foster care system since the age of 10, child of an alcoholic and finally decided his child needed more than he could offer and walked away.

What I realize for my children who came from the system, their parents mental health needs, their stories, their prenatal exposures, their poverty and the multitude of issues they couldn't do it and thus the services had to intervene.

My daughter once asked me if I am angry at her bio Mom, I told her no, she had her own illnesses and challenges and if it was not for her... they would not be in my life.

My husband and I took my middle son to meet his mother and I finally after 16 years met the woman who gave birth to my children.  It took but 5 seconds to realize that she had developmental issues, I could see the look in her eyes of the sadness in seeing them and the joy to be reunited. But my son found that she thought everything is all better now that he is back and like nothing ever happened.  She could not understand her circumstances and how any of it affected them.  It is just how her brain works and her challenges prevented her from parenting. I had to help my son come to terms with his bio Mom and help him understand her compassionately.

After entering the FASD realm I realized that my own brother may have been affected by prenatal alcohol exposure back many years ago. Back in the 1970's my mother was given alcohol IV's to stop her premature labor at 5 months. He would have learning challenges and we helped intervene with his dyslexia by

It has now been 18 years since we brought our children into our lives, I have learned one thing...  Anger doesn't change anything.  It only hurts.
I have had to forgive the system for failing my children, I have to stop being angry at Alcohol and addiction. But I do not have to like it.  But turn my anger and sadness into something positive.

I am not a productive parent if angry.  My kid's little PTSD radars sense it and their healing and stability depends on me being the best mom that I can be. I can be honest, sad and answer them with honesty, but blame is never productive.

Resource: Professionals Without Parachutes: Supporting Students with Fetal Alcohol Spectrum Disorders


Having resources to share with our schools and professionals who work with our kids is a must.
Here is a great resource to pass on.

Professionals Without Parachutes: Supporting Students with Fetal Alcohol Spectrum Disorders

"A key to supporting students with Fetal Alcohol Syndrome Disorder (FASD) is having a good understanding of FASD and how individuals with FASD are impacted. This resource provides an explanation of FASD, its impact on the brain as well as explores behavioural patterns in students with FASD. Strategies for designing classroom instruction and routines to support students with FASD are also highlighted. The resource was developed by Dr. Jacqueline Pei and her colleagues, Stephanie Hayes and Alethea Heudes."
Pass this on to help train those who work with our kids.

Tuesday, October 6, 2015

Article: Confabulation - Introduction for Psychologists




Confabulation is a term that is very common in the Fetal Alcohol Spectrum World and when we find out about it, it is only by living it and sometimes finding out the hard way.  Our kids filling in the gaps, pleasing the question asking professional and sometimes the harm it can do is often harmful and traumatic.

Confabulation: An Introduction for Psychologists

An important bookmark worthy resource to explain proactively to those who will be in the position of having to talk to our kids and for those who find themselves the hard way of learning, to give to our lawyers when the Child Protective and well meaning professionals have believed our children's faulty memory and realities.


Friday, September 4, 2015

Article: PTSD and Special Needs Parents: Calling It Like It Is.


Our kids are not the only ones with Post Traumatic Stress Disorders. There is much being written these days about Mothers of those with Autism and other disabilities having some of the same symptoms as the soldiers who have served in combat. 

Some of us parents know this well and today I found this article and set of resources and thought it was worth sharing with my fellow soldiers.


Yes, I do have PTSD.  I have compounded PTSD as I had to survive the war of earning my adoptive children's love and their intent to push me away and off the stairs.  But I have learned to live with and manage it, and it has given me unique insight into my own children's PTSD.

Anny

Tuesday, August 25, 2015

NOFAS Webinar: The Role of the Social Worker in Preventing, Identifying and Treating FASD



Last week I logged into a Webinar from Nofas and thought it was worth sharing.

The Role of the Social Worker in Preventing, Identifying and Treating FASD
from 7/15/15.

Here is the link for this hour long webinar presented by Leigh Tenkku Lepper, PhD, MPH
and David LCSW

This is a good resource to bookmark to share with the professionals working with your children.

Anny